Jacob’s Journey with PFFD

Every day Jacob attends land and pool therapy at Sinai Hospital in Baltimore Maryland. At 1:00 pm Jacob starts with an hour of land therapy with Kim and her team to stretch all his muscles. Every day Jacob’s leg is becoming longer and he has already gained an inch of length. The exercises make sure that the muscles are stretching to keep up with the bone growth. It is important that his knee bends are 45 degrees or more through the entire lengthening process or the lengthening process has to be stopped. Right now Jacob is able to bend his knee between 65-75 degrees each time. That is is pretty good but the knee bends it is painful so one one hour before physical therapy we give Jacob pain medication to help him through it and he squeezes putty.

Next Jacob takes a quick shower to remove his bandages and clean his pin sites before being lowered into the pool for pool therapy from 2:00pm until 3:00 pm. Now he is ready for the pool.

Jacob with his pool therapist Jeremy and all Jakes pool buddies swimming under the water.