Jacob’s Journey with PFFD

We all made it home after a four day road trip from Baltimore to Denver. Jacob is now back at school in first grade. Jacob attends in a wheel until the end of January. The kids at his school have been great! Jacob leaves school at 2:30pm so he can then attend physical therapy at Childrens Hospital Physical Therapy department in the afternoons. At therapy Jacob is regaining his full range of motion in relation to his left knee and hip. Jacob was at 42 degrees with his knee bends when we stopped lengthening and now he is at almost 55 degrees. This is awesome. He should regain about 5 degrees a month until his fixator comes off and then more rapidly after that. We just found out that Jacob will have his surgery to remove the fixator mid December and then he will NOT be able to weight bear at home or school for another month which would bring us up to the end of January. Physical therapy then continues to regain full movement of his knee and hip until June 2008. We are so proud of Jacob and we can all see a light at the end of the tunnel!